born with an extra chromosome, these people carry unconditional love

AA / Tunis / Hend Abdessamad

“The child sees himself first through the eyes of someone looking at him”. Michael Lafon

At the age of 7, Hassan Merhi, a Lebanese child with Down syndrome, was able to translate Ayoub’s role in the Syrian-Lebanese series “Shatti Ya Beirut” (Beirut when it rains), in which he stole the show from great artists. in the Arab world, like Abed Fahd, Elsa Zgheib and Fadi Abi Samra, with his smile and cheerful disposition.

“Most of the time it’s fun,” Elsa Zgheib, a Lebanese actress, one of the main characters in the series and mother of two, said in an interview with the Anadolu Agency.

Elsa shared her experience with little Hassan, Elsa described: “With the team, we had the right manners to behave with the child and simplify the conversation, but what surprised me the most was that Hassan was smart, he memorized name everyone on the set and know the role of each technician ”.

Comprising the role of Amani, a character close to Ayoub’s father, the actress therefore shot several sequences with Hassan “if he is calm and focused, he understands everything and something can happen. normal conversation ”, he specified.

“We were forced to stop filming, twice, because Hassan was tired, you know that a day of filming can last until 12 noon and no kid can stand those hours at work. , “said Elsa Zgheib. he was resting, so we pretended he was asleep in some scenes so as not to miss the whole day of filming ”.

After this experience, the Lebanese woman participated in a “Night to shine” awareness event organized annually at the SKILD Center, a center dedicated to children with special needs, to call for their social cohesion, where he has the opportunity to know more.

“In Lebanon we are working to involve different children in society, to enroll them in ordinary schools, to invite other children to accept them,” he said.

– It is called the love chromosome

Trisomy 21, also called Down syndrome, is an anomaly of chromosome 21, a congenital malformation, a type of genetic anomaly related to human chromosomes that results from an accident of non -separation during meiosis. (formation and cell division).

“Trisomy 21 is also called Down syndrome in reference to British physician John Langdon Down who described it for the first time in 1866”, explained Ali Saâd, professor, head of the department of cytogenetics and reproductive biology at Farhat Hached Sousse Hospital. , in an interview with the Anadolu Agency.

“It is a congenital disease that manifests itself from individual pregnancy, we are born with it. Trisomy 21 is characterized by the presence of cells on three chromosomes 21 instead of two”, explained Professor Saâd.

The winner of the first prize of the Arab Doctor, Ali Saâd, pointed out that “Down’s syndrome affects both men and women, with a frequency of approximately 1 in 700 births”.

The head of the department of cytogenetics and reproductive biology reviews the main clinical signs of trisomy 21 ”people with the syndrome have craniofacial dysmorphism, characterized by a round and small skull, the oblique palpebral clefts at the top and on the outside, a flat occiput, a short, flat nape with excessive skin, a flat face with a domed forehead, white patches at the level of the iris, the nose short, the mouth small, tongue large as well as small and round ears “.

“Hypotonia, which is the weakness of the muscle that leads to distension of the abdomen”.

“The branches of people with Down syndrome are identified by a large, stiff hand with relatively short fingers and median palmar creases, the feet are wide, small and flat”, Professor Saâd determined.

And the specialist goes on: “Malformations are more frequent, 40% of them affect the heart, intestines, or skull”.

“Mental retardation is a constant symptom, the skills of abstract reasoning being most affected while effectiveness and sociability are somewhat preserved”, he explains.

Human Genetics engineer Aymen Salhi testified on her part at the Anadolu Agency that “naturally open and happy, people with Down syndrome are, in fact, always looking for contacts and exchanges with others.” the environment is desirable to promote socialization.

The chromosome of loveis called, this extra chromosome.

– One, two, three … Go! Everyone at his own pace

People with trisomy 21 experience difficulties with perceptual activities such as visual and auditory discrimination skills.

People with Down syndrome have, in fact, a slowdown in the speed of processing perceptual information, recognition by touch, and copying of geometric shapes, they also have deficiencies in terms of attention, memory, speech, executive function, spatial cognition.

“Individuals with Down syndrome have more difficulty performing tasks to change the order of things than average people improve,” Salhi added.

As well as a specific medical follow-up, a paramedical care with a complementarity of treatment modalities such as psychomotricity, speech therapy, psychology, and physiotherapy is essential.

In the same opinion, physiotherapist, Zied Arfaoui, commented “children with Down syndrome often suffer from a neuromuscular delay, which particularly affects their psychomotor development, such as delay in recovery. to walk, balance, movement, concentration, and so on. ” .

“As a physiotherapist, I have adopted both approaches, either rehabilitation or psychomotricity, depending on the patient’s diagnosis” determined the physiotherapist, pointing out that “subjects with Down’s syndrome are also concerned with occupational therapy, to improve their motor skills are good and learning to write. or even speech therapy to treat speech and speech delay, there are many treatment modalities to follow. “

– Passion if you hold us

Cook and drummer, Mehdi Kacem, a twenty-one Tunisian with Down syndrome, overcame all obstacles to fulfill his dreams and have others, thanks to his family and those around him who strengthened- on his self -confidence from an early age.

“I know how to cook pasta, lasagna, pizza, meat, chicken and hamburgers,” Mehdi enthusiastically said in an interview with the Anadolu Agency, before boasting of his two degrees in cooking and baking.

The boy has long worked in a “DaPietro” pizzeria located in a residential area of ​​Tunis, where he has succeeded, with his good humor and his joie de vivre, in retaining customers.

Everyone’s friend announced with great determination that he was a sports addict.

“I do a lot of exercise for the shoulders, arms, legs in the GymBox, in the gym I go to, there are a lot of fitness machines and training equipment,” he told AA.

“I’m passionate about drums, I learned to play in a conservatory and I’m also interested in films,” Mehdi added in a happy tone.

With nearly 6 thousand subscribers and more than 650 photos, an Instagram account full of publications of an amateur modeling model, it’s still about Mehdi Kacem proving that his next goal is to be the face of a Tunisian brand “my dream is to be a model”.

From Tunis to Ilford, the birthplace of the English model who made the cover of Allure, Glamor, ELLE, Euphoria and Mission Mag, she was Ellie G.

Nearly 15 years old, Briton with trisomy 21, Ellie Goldstein, began her modeling career, to pose, at the age of 18, for luxury brand Gucci. With her extraordinary beauty, she stole all eyes, now the 20-year-old face of many international brands such as “Adidas”, “Vodafone” and “Superdrug”.

“I will be a model of a Tunisian brand! Come and taste my pizza and Ramadan Mubarek to all” by Mehdi Kacem to readers of Anadolu Agency.

Only part of the dispatch, which is broadcast by the Anadolu Agency to its subscribers through the Internal Broadcasting System (HAS), is broadcast on the AA website, in a summarized manner. Please contact us to subscribe.

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